Personal essays, survivorship tips, and honest community from Nicole McLean — breast cancer survivor and founder of My Fabulous Boobies.

What I wish I bought before surgery that no one told me about

Before my operation, I bought a soft bra, a neat pillow and a pink robe that made chemotherapy sound almost civilised. I also bought several things that turned out to be useless, including an enormous neck pillow shaped like a swan. Surgery did not need a shopping editor; it needed someone to tell me I would be tired, sore, hot under the theatre lights and bad at reaching behind my back.

When I say what I wish I bought before surgery that no one told me about, I mean practical things that would make recovery less confusing. My surgery happened in a public hospital, where the hospital care was covered through Medicare, but Medicare did not supply a zip-front robe, a nonslip shower mat or a long phone charger. My strongest preparation was a list; my weakest was assuming a hospital gown, a basic bra and a decent pillow would cover every part of post-operative life.

The details depend on whether you have a lumpectomy, mastectomy, reconstruction, drains, mobility needs or some combination of them. A bra fitted for someone else may be the wrong shape, a wedge may be uncomfortable after abdominal surgery, and “recovery” can mean something different in week one from month six. These were the purchases that made the biggest difference to my comfort, independence and sanity.

Recovery item What it helps with Sensible buying note
Front-closure bra Dressing without twisting or reaching behind you Ask whether one is supplied and whether you need wireless, post-mastectomy or fitted support
Soft zip-front robe Chemotherapy, appointments and hospital stays Choose loose cotton, deep pockets and a shape that closes easily
Bed wedge or small cushion Supported sleeping and travel Check your surgical restrictions and avoid pressure over wounds or drains
Shower stool and nonslip mat Washing when balance is poor Buy lightweight equipment that can be moved and cleaned
Loose button or zip clothing Protecting wounds and avoiding overhead dressing Skip laces, tight bands and anything that must be pulled over the head
Long charger and power bank Keeping a phone available in hospital Check voltage and connector compatibility rather than relying on a wall socket
Raised toilet seat Easier standing after anaesthesia Measure first and ask your team whether it is necessary

Clothes that do not require a wrestling match

The clothing lesson arrived when I tried to pull a T-shirt over my head after surgery and immediately regretted the decision. Soft button-front shirts, loose pyjamas and anything that zipped rather than stretched became my uniform. Personal accounts such as those on My Fabulous Boobies reminded me that breast cancer changes ordinary tasks in ways family and medical staff can miss, even when everyone means well.

The bra deserves its own paragraph because “post-surgery bra” is not a standard item. After a lumpectomy, you may need gentle wireless support; after a mastectomy, a post-mastectomy garment or a bra fitted for your remaining breast and band measurement may make more sense. Compression is not automatically better. Ask the surgeon’s clinic what will be provided, when it will be fitted and whether your operation requires a particular garment. Buying three sizes in a panic only creates more drawers to unpack later.

I found inexpensive cotton basics at Kmart Australia and Target, especially loose sleepwear and plain undershirts that could be worn open over dressings. I also ordered a robe through an Australian online seller and had it delivered by Australia Post, which was a mistake because I needed it the day before surgery. Local price is not the same as local timing: leave room for delivery, and choose fabric you can wash at short notice rather than anything that needs special care.

The shower and toilet, made less athletic

A lightweight shower stool, a nonslip mat and a handheld showerhead turned a ten-minute wash into a manageable task. I also used a raised toilet seat for the first few days because standing after general anaesthesia felt like climbing out of a swimming pool. Ask your ward or occupational therapist about borrowed or hired equipment; a hospital loan scheme or equipment hire service may save money, and short-term use makes the purchase less guilt-laden.

None of this means you should wet a healing incision. Your surgical team’s discharge instructions should govern when the wound can get wet, how dressings are managed and which movements are safe. Likewise, do not buy scar gel, silicone sheets or strong creams in advance and apply them to an unhealed wound. Buy a few plain, fragrance-free basics instead, and leave treatment decisions until the surgeon or clinic gives the go-ahead.

The swelling question was where I needed clear guidance rather than internet guesswork. The lymphoedema education at Exantema helped me understand why an arm can feel heavy or tight and why early assessment matters. Compression garments should be prescribed and fitted appropriately, not bought as generic “recovery” gear. I also learned that a PBS-listed prescription at the chemist could still carry an out-of-pocket cost, so I brought the actual price into my treatment budget instead of assuming everything would be free.

A kit for long treatment days

The robe was worth every cent. Mine had a generous zip, soft lining and pockets for a phone, tissues, lip balm and the small things that somehow become essential during a three-hour infusion. Australian hospital rooms can be chilly even when Brisbane is baking outside or Adelaide has turned unexpectedly mild, so a layer that opens easily was more useful than a thick coat. A lightweight fan, headphones and a refillable bottle made long appointments feel less like an endurance test.

The habit of keeping everything in one bag grew from my infusion days. I began recording questions, temperatures and strange sensations, which later became the practice described in infusion-suite journaling. Writing also helped me separate what had actually happened from what a tired brain had filled in at two in the morning. A notebook, pen and small power bank became more useful to me than another decorative pillow.

For the car journey home, a small clean cushion gave me a comfortable place to rest without leaning directly on the wound; its position had to suit my surgery and any drains. I also packed water, a lip balm, tissues, a travel-size toothbrush and dry shampoo for days when washing felt like too much. The aim was not to look ready for a magazine shoot. It was to be warm, clean and able to leave the hospital without turning every small errand into an expedition.

The paperwork and phone calls nobody warns you about

I put my Medicare card, Medicare number, GP details, surgeon’s contact, pathology information and discharge paperwork in one clear folder. It felt bureaucratic until the day I needed three pieces of information while mildly sedated. If I had private health insurance, I would also have kept the policy number and procedure codes nearby. Australian patients may need Centrelink forms or sick-leave evidence as well as medical summaries, so it is worth asking a hospital social worker which administrative tasks apply before discharge.

The phone habits mattered just as much. A nurse explained when a symptom was routine, when to ring the clinic and when to use urgent care; that distinction is much easier to remember than a late-night search engine spiral. The advice in calling my nurse captures the benefit of having a direct route to a clinician who already knew my treatment. For severe or rapidly worsening symptoms, the urgent-care direction takes priority, not a wait for the next routine call.

Transport deserves a plan as well. Arrange who will drive you home because you should not drive after anaesthesia, and ask whether you need someone with you for the first night. Hospital parking can be expensive, rideshare availability can fluctuate around discharge times, and tolls add another line to the bill. A trusted friend, taxi voucher or pre-booked ride may be more sensible than improvising from the hospital entrance.

At home, recovery is partly a food-and-supplies project. Stock the fridge with easy meals that follow the oncology team’s advice about food safety, and keep snacks that do not require preparation. Have clean towels, bin bags, tissues and the prescribed pain relief within reach before you arrive home.

What I would keep and what I would skip

If I could pack a bag again, the soft robe, long charger, loose zip-front shirts, nonslip shower mat and simple raised toilet seat would come straight out. The shower stool would earn its place, and one comfortable small cushion would be useful for travel. I would also buy pyjamas without labels near the neck, because a scratchy seam suddenly feels like a personal insult.

I would skip the swan pillow, multipurpose scar products bought in bulk and compression garments without professional advice. I would buy fewer bras and rely on the surgical team’s guidance about support and timing. Recovery kits can become expensive collections of hope, so I now consider whether an item will make a specific ordinary task easier. If the answer is no, it can wait.

Looking back, the best things were rarely glamorous. They gave me a warm drink without hunting for a cup, a dry shirt without changing a dressing, and a way to reach the phone without asking for help. The lesson worth keeping is simple: prepare for ordinary discomfort, protect your independence, and give your future self one less thing to manage on the hardest days.